Thought I'd share an experience I had at a "world class" teaching university yesterday. My husband has cancer and is facing a bone marrow transplant at this school in a couple of weeks. I have allergies which make it very difficult to breath in the mornings. Tuesday we were waiting for the apheresis draw and some brainwashed liberal walked by the waiting room (with one person besides my daughter and I) and gave me what for for having my nose out of my mask. Yesterday he did it again. Louder! I told him that the CDC agree that masks didn't work and he threatened to make me wait 4-6 hours in another part of the hospital while my husband had his draw. The worse part was the guy across the room saying he agreed with the braindead nazi. The same guy who recoiled in horror when I extended my hand upon meeting. What was funny is his wife was not making enough bone marrow and my husband was making it in spades. She had 800,00 cells after 5 days and my husband but 1.2 million his first day. Seems there is something thing said for not fearing every microorganism we come across. If you don't have an immune system they can't very well extract it now can they?
One result of medical tyranny
Bloody Hilarious
Ok. This is very long. These ARE NOT my words but the first hand experience/advice of a good friend of mine!!!!! It was posted on fb and I’ve saved it because she’s wise and she learned a whole lot through this horrible experience!!!
One thing that I have learned through cancer is that although you may be receiving medical care, not everyone is your advocate. Also, a lot of hospitals do not even offer any sort of patient advocate for cancer patients (University of Kentucky is one of those) and if you want the best care, you must be prepared to ask hard questions and take up for yourself.
While I don't believe that most of the people in the medical community are out to get you, I do believe that there are many whose only objective is to make money and create life long customers (at you...hospital administrators, pharmaceutical companies, and department heads).
There is a wealth of information out there, including actual patients who have survived and they often have suggestions that doctors may not. I refuse to be locked in to only using what the doctor told me, because some of their suggestions have already come at the detriment of my health.
If you or a loved one has cancer, here are my suggestions.
Don't panic like I did and jump straight into the treatment program. No matter what they say, God has the final answer and I'm doubtful that waiting three or four days to make a decision is going to make anything worse. If nothing else, take the time to at least pack a decent suitcase and get things in order because we didn't know we would be spending almost a month at the hospital when we got there and weren't in the least bit prepared. Also, demand they let you have visitors or someone to stay with you. I don't care what their policy currently is. They broke it to let Greg stay, so they can do the same for anyone else. You NEED someone there who knows you.
Do some research and make a list of questions. Specifically ask about the Greek Test/RGCC and request the doctor order it with Onconomics Plus, Onconomics Extras, and Chemo SNP. This will help them determine which drugs, herbs/supplements, and chemo will be the best course of treatment--it's generally a combo of multiple things. Most hospitals don't offer this right off the bat and insurance probably won't pay for it. It's shameful honestly, because it could save people and/or give a lot of people a better quality of life. If I were to relapse (which I refuse to accept that I will), this would be my first course of action.
Exercise. Most hospitals will send in physical therapy, but they only come once a day at most. Move as much as possible. If you become bedridden, do "armchair" exercises. And if you can possibly walk to the bathroom and back, even if you have to have help, do it! I didn't exercise like I should have, but I think my constant bathroom breaks did me a lot of favors!
Look up https://www.mycancerstory.rocks/ and read Joe Tippins' story. Stage 4 lung cancer, given 6 months to live even with chemo. He started a protocol that a veterinarian friend recommended and that's been somewhere around four years ago. They are currently trying to get a study going with the protocol because many other people have cured their cancer with it as well. Because it wasn't a "trial," the scientific community doesn't recognize the validity of it. Also, the pharmaceutical industry can't make a lot of money off of it. They are currently conducting trials with the "sister" drug of the one he used. Scientists say it's specifically for humans, but the truth is, so far it's been slightly less effective and it costs about 100 times more.
Look up: The effects of high dose vitamin C on the side effects of chemo therapy; vitamin A deficiency and how vitamin A fights cancer; vitamins and supplements needed for cancer patients; the effects of deficiencies and gut health on your immune system; the effects of excess sugar on your overall health; the effects of brain chemicals on your mental health and how to replenish dopamine and serotonin specifically; the importance of Melatonin to your sleep and entire body systems; how to combat autoimmune disease (because chemo will basically give you that if you don't already have it); side effects of chemo (specifically whatever your doctor recommends) and what can be done to combat them; and the use of Punatinib/Iclusig as opposed to having Bone Marrow Transplant (I can point you in the right direction on this research).
If you have the means, I suggest consulting a functional medicine doctor, even if it's in addition to your regular oncologist/hematologist. They can help you get to the root cause of your disease(s), as opposed to just treating one illness or symptom with drugs. I wish I had done this first, but I didn't know to do so. It's definitely something I will be doing asap. They should also be able to point you toward a functional medicine doctor who specializes in cancer. Most of the ones I've read about started out in traditional/Western medicine and became very frustrated with the treatment options, so that's honestly who you need on your side.
If a doctor isn't answering your questions, makes you very nervous or on edge (I had to take a nerve pill just to go to my first hematologist for a follow up), tries to force a treatment you don't want, or berates you in any way, you have every right to fire them. Remember: They work for you! I know it's very easy to give in because they are supposed to be the "professional." However, what I have learned is that many practicing physicians are, in fact, just "practicing." If you need a surgeon or emergency treatment, traditional medicine is a great thing. But they don't know everything and even my current hematologist told me that a lot of doctors in the cancer community are stuck in their ways or only focus on one way of doing things because that is what they know and what they've always done. That was my former doctor to a "T" and one of the reasons I let him go.
Don't let anybody tell you to avoid family and friends. Even if your immune system is extremely vulnerable, you need all the support network you can get. There are ways to be safe, even if they can't hug you (although a friend in oncology told me it was safe to hug your immediate family in the early days after chemo, as long as nobody was sick or running a fever). People can wear masks or sit on the other side of the room. Do video calls and phone calls with people who don't live close by. Daily texts and messages are always appreciated, although, if it's people you are used to spending time with, seeing their faces and hearing their voices is so very important. You need contact with the people you love to keep you going. It does wonders for your mental health.
Find a really good nutritionist. A naturopathic nutritionist would be great, but they aren't always easily found. I tried to work with multiple nutritionists at UK, but the only answers I ever got were "ask your doctor," so I question their purpose other than to give free Boost coupons. If you can afford to hire one who is not part of your hospital group, you'll probably get better results. And be aware that you will likely get zero answers from your doctor. Most of them don't study a lot about nutrition in med school. My former doctor was fond of saying "just eat something" and "vitamins/supplements don't work." (I personally think he's an idiot.)
Use your resources. If you have loved ones who work in fields that could be helpful to you, don't ever be afraid to ask questions. I know everyone frowns on "Dr. Google," but use it to start and then dive deeper. (Hint: Go way beyond the first page.) I spent an extreme amount of time on the National Institute of Health website. (Use their search function, because anything that could be considered negative toward traditional treatment or big pharma isn't usually going to be indexed on Google.) MD Anderson has some interviews and articles that give a lot more information than I thought a cancer center would. Look at natural news sites and herbalist information (people did use to treat diseases before Rockefeller decided he could make more money if he convinced them to do it the way he wanted). If the Cherokee Indians and other Natives used it, it's worth looking into. Read cancer survivor stories. Part of the reason I am so against Bone Marrow Transplants are because of all of the horror stories. It was about 2 out of 20 that were positive. That's not good enough for me.
I hope this helps someone. I know that my way of doing things is not going to be everyone's, but I think we all deserve the truth and a fair shot at living as healthily as possible. There is so much that is being hidden from us and while it's obviously immoral, it ought to be illegal. I'll post other information if I think of it. One of the lovely after effects of chemo is that your thinking processes slow and get "foggy."
Thank you so much! We are doing some of these these but will definitely research the others.