My wife has come down with a sickness and had to stop working. The doctors won't officially tell us it's MS but are telling us it is MS. I've got good insurance through work but it doesn't cover some of the special test to confirm until we've paid out almost 10 grand. Without those test she can't get disability either. With her out of work the last 6 months it's drained our savings. If anyone can help or has advice we'd appreciate it. As it stands after cutting everything out that we can and selling everything we don't need we will still come up short about 700 a month until she can get disability or go back to work. This is mainly just me needing to scream into the eather in frustration, but if anyone has advice or prayers we would appreciate them.
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What kind of tests do you mean? Have they done an MRI and confirmed scarring on the brain and spinal cord? Have they done a spinal tap to confirm O-bands in her spinal fluid?
Look into the Wahls Protocol. It's a paleo way of eating developed by a doctor who has PPMS (primary progressive MS). She also has examples of exercises specifically designed to help people with MS maintain their mobility. She went from laying in a reclined wheelchair all day to biking like 20 miles at a time. At one time, she was doing clinical trials on the effects of diet on auto-immune diseases such as MS; I don't know if those are still ongoing. Her book was one of the first I bought when my husband was diagnosed with MS back in 2016. He's never been willing to stick to the strict diet, but I know firsthand how much we are affected by what we eat (I have autoimmune arthritis and it goes into remission when I stop eating processed sugar).
Financially...if you choose to go the pharma route (which I'm normally not a fan of, but MS is scary) the doctor needs to go ahead and get her on an aggressive treatment like Tysabri. The Dr will need to go to bat for her with the insurance company; the insurance company will try to insist that she try something older (and less effective) like copaxone first. My husband's neurologist has done this on several occasions, so if yours won't fight for your wife, find a new one! When the insurance company approves a high priced drug, you will want to enroll in the drug company's financial aid program. It is the only way we were able to afford Tysabri (monthly infusion) for several years and now Keysimpta (administered at home). For both of the medicines, the manufacturer pays the deductible with the first dose of the year.
Prayers for your wife (and you)!