Find a doctor that will prescribe valacyclovir. EB is a herpes virus and valacyclovir is a herpes treatment. A study I read indicated that treatment for 11 to 12 years is needed to reduce the virus to undetectable levels. My son has chronic EB and it about ruined his life. He's been on the treatment for nearly 2 years now and almost back to his old self.

EB seems to be one of those weird diseases that most people are unaffected by but a few are highly susceptible to. It seems to cause a cascade of problems including heart and GI issues. Get the EB under control first, the other problems start to become alleviated.

It may be necessary to look into veterinary treatments for herpes viruses. Just a bit of advice... focus on treating this as a herpes infection. That is more clearly understood compared to the nebulous symptoms associated with EB.

Find a doctor that will prescribe valacyclovir. EB is a herpes virus and valacyclovir is a herpes treatment. A study I read indicated that treatment for 11 to 12 years is needed to reduce the virus to undetectable levels. My son has chronic EB and it about ruined his life. He's been on the treatment for nearly 2 years now and almost back to his old self.