Rough week TBH. Currently we are out of the trial because of the insurance refusal to sign a single payer agreement. I am trying to create a strategy for going against the biggest most corrupt insurance company. Additionally since he is now a Medicaid patient I am gonna have to prepare for the system to protect itself. I keep reminding myself that God didn’t place me here if he didn’t give me and out. He has walked with us so far and he won’t leave my boy here. He didn’t lead us out of Egypt only to send us to die in the desert. I am currently researching my heart out trying to find the loop holes. Thank you for asking and know it means so much. My children are my life but I trust our Lord and know he loves them even more than I do. This too is for a reason and I am gonna fight with all I am until our Lord tells me enough. Don’t know exactly how yet but if there is a way I am confident our Lord will lead me too it.
I don’t know how. I traded research on everything else with specific medical research and I am kinda out of the loop now. I was kinda thinking of finding a way to tell our story and pump it out then start writing every one I could think of .
Briefly post on X: My son has fallen through the cracks We MUST HAVE President Trump's help NOW.
...Or something similar. Has to be short & sweet to gain attention FAST. You can write letters but be brief.
I would also contact people on X like: Rachael Campos Duffy, Terrence Williams, Monica Crowley and of course, MELANIA!
CALL THE WHITE HOUSE ask to leave a message for one of the First Lady's Assistants.
Yes! How are y'all doing Joan? 🙏
Rough week TBH. Currently we are out of the trial because of the insurance refusal to sign a single payer agreement. I am trying to create a strategy for going against the biggest most corrupt insurance company. Additionally since he is now a Medicaid patient I am gonna have to prepare for the system to protect itself. I keep reminding myself that God didn’t place me here if he didn’t give me and out. He has walked with us so far and he won’t leave my boy here. He didn’t lead us out of Egypt only to send us to die in the desert. I am currently researching my heart out trying to find the loop holes. Thank you for asking and know it means so much. My children are my life but I trust our Lord and know he loves them even more than I do. This too is for a reason and I am gonna fight with all I am until our Lord tells me enough. Don’t know exactly how yet but if there is a way I am confident our Lord will lead me too it.
I'm so deeply sorry that you you are both enduring this! 🙏🤍
Have you thought about contacting someone like Bobby, Dan, Lara, Susie Wiles, etc. about getting your son in the 'Right to Try' Program?
Brilliant idea btw and thank you
YW!
I figure if I get something out that starts drawing enough eyes maybe my sons condition can be important enough not to just sit in an in box somewhere
I don’t know how. I traded research on everything else with specific medical research and I am kinda out of the loop now. I was kinda thinking of finding a way to tell our story and pump it out then start writing every one I could think of .
Briefly post on X: My son has fallen through the cracks We MUST HAVE President Trump's help NOW.
...Or something similar. Has to be short & sweet to gain attention FAST. You can write letters but be brief.
I would also contact people on X like: Rachael Campos Duffy, Terrence Williams, Monica Crowley and of course, MELANIA! CALL THE WHITE HOUSE ask to leave a message for one of the First Lady's Assistants.
White House Number: 202-456-1414