Welcome to General Chat - GAW Community Area
This General Chat area started off as a place for people to talk about things that are off topic, however it has quickly evolved into a community and has become an integral part of the GAW experience for many of us.
Based on its evolving needs and plenty of user feedback, we are trying to bring some order and institute some rules. Please make sure you read these rules and participate in the spirit of this community.
Rules for General Chat
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Be respectful to each other. This is of utmost importance, and comments may be removed if deemed not respectful.
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Avoid long drawn out arguments. This should be a place to relax, not to waste your time needlessly.
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Personal anecdotes, puzzles, cute pics/clips - everything welcome
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Please do not spam at the top level. If you have a lot to post each day, try and post them all together in one top level comment
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Try keep things light. If you are bringing in deep stuff, try not to go overboard.
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Things that are clearly on-topic for this board should be posted as a separate post and not here (except if you are new and still getting the feel of this place)
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If you find people violating these rules, deport them rather than start a argument here.
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Feel free to give feedback as these rules are expected to keep evoloving
In short, imagine this thread to be a local community hall where we all gather and chat daily. Please be respectful to others in the same way
I take Pepcid AC Allegra with Quercitin 2x a day, Fish Oil Alpha Lipoic Acid and L Carnitine Singular at night with Magnesium L Threonate , CoQ10 100 mgs 3-4 times a day depending on UV exposure, Methyl Folate, a B complex, Liposomal C, Vitamin D, Vitmin E with Selenium, Zinc, Special Probiotics for this condition (I cannot eat anything fermented) Manaluka Honey, the trace minerals. I do not eat high histamine foods, I take enzymes for absorption, because mast cells in the stomach prevent absorption, gluten free, I tolerate fresh cheeses, cottage, mozzarella, scarpone, butter, I cannot do black teas, black or red pepper, cloves, cinnamon, coffee is a special coffee called Purity coffee, cannot do sunshine exposure, processed meats, soy sauces etc, I feel great compared to how I used to, but I am hungry for a lot of foods, I can get away with some tomato and a little fresh lemon juice if I take a special enzyme before I eat them, oh, and of course NAC, which I have been taking for years which my doc says has been protecting my lungs. Mast cells are in the GI tract, the respiratory system, and the skin. I manifested anaphylaxis in head to toe hives and vomiting, never had trouble breathing or throat closing, and that is thanks to the NAC. The shock came because i was drinking kombucha and had eaten a bacon lasagna, woke up with GERD from hell, and swallowed some Mylanta with Gas x, it said on the bottle if a rash occurred to contact Dr immediatly, rash? I looked like a burned Leper, then started vomiting,doc ordered me to the ER I had thought that all those fermented things were good for my gut, they are, but not for a person with this condition. She had tried to tell me about it, but I brushed her off, thinking my main problem was Lyme, so was not taking the anti histamines etc she advised. Well, after that crisis, I take all of her advice and feel so much better, even with the Lyme. Before the crisis about a week before, i had been doing a parasite cleanse, so between the herxing and the allergy to the Mylanta, it pushed me over the edge. I am not cured, but hardly have any reactions to anything other than some mild itchy skin once in awhile. High UV exposure would also send me to the er also.
I thank you for sharing...this is a very interesting read. I am aware of MCAS but had never done any research on how to remediate it. It sounds like you are doing very well and apparently your doctor has helped you out quite a bit.
Here is a little info on Lions Mane Mushrooms...Mike Adams severely cut his hand and this really healed the nerves quickly...interesting perhaps... https://naturalnews.com//2023-07-30-lions-mane-mushroom-benefits-brain-nervous-system.html
There also is a homeopathy called Histiminum...here is a link...I have used this pretty extensively...
https://www.youtube.com/c/drsauravarora
I actually am allergic to the sun and find if I can keep my D at about 60ng/ml I can slowly acclimate to the sun and don't break out in an itchy rash...I have also had cold hives (used the homeopathic Natrum Mur) and I have had Dermatographism and an anaphylactic reaction to a fire ant bite...so I can REALLY appreciate your hives...I think that is the worst thing ever....
Anyway, read or ignore...I am just throwing out some things out that MAY be of interest...I always love to learn about new illnesses and what people are doing to treat it...I am glad you are doing so well...hope others can learn from your knowledge and experience...God bless you and yours....