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weaponizedgravy 4 points ago +4 / -0

I, too, just learned of the loss of your mother. I am so sorry for her unexpected passing, may her memory and incredibly thoughtful, generous life be eternal! 💔 (TBH, I can’t think of a more beautiful way for a devoted child of God to go.)

Thank you for providing this community with updates and sharing your touching eulogy. She sounds even more brilliant, gifted, and generous than the wonderful contributions she made here. If I can be half the parent to my kids that Alina was to you, I’d consider my life a success.

I’m happy to hear that despite the difference in social and political views, you and your mother remained close. May you always have her best memories to guide you. May the good Lord surround you with strength and comfort during this transition and may He bless and keep you always (even if you don’t believe 💐🧡).

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weaponizedgravy 4 points ago +4 / -0

Working through pediatric cancer now too. Found Zuza’s Way (out of WI). I know money might be tight, but Viscum (European mistletoe) injections help the liver detox.

We watched AST (normal range 13-40) and ALT (normal range 10-49) go from 319 & 796, respectively, to AST 29 & ALT 30 after 4 mistletoe injections.

Currently running $190/box (8 ampules per box) and you would need to schedule a “visit” (zoom or phone) in order to be prescribed mistletoe through Zuza’s Way… there may be others who Rx mistletoe, but finding someone who wants to work with peds is challenging.

I don’t have any more info (besides what I have seen here) regarding clots.

A word of caution if/when you start Fenben, expect CBC levels to drop the first 6weeks of use. They stabilize after that. If already on a blood degrading chemo (like methotrexate) be cautious. We just ran into a big issue bc I didn’t read carefully enough.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9413524/

I’m so sorry you’re dealing with this. May the Good Lord and Savior be with you and your beautiful boy. May He remove any remaining cancer and heal and repair every cell so this angel can grow healthy and strong all the days of his life!! 🧡🧡

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weaponizedgravy 2 points ago +2 / -0

Not saying don’t use it or try it (It would still be my go-to) just monitor CBC and full CMP (comprehensive metabolic panel)!

I’m personally THRILLED to see bigger names study Fenben. I can’t wait to get some truth-news results.

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weaponizedgravy 3 points ago +3 / -0

Haven’t read the article yet, so I don’t know if it’s covered, but PSA we’re using Fenben in conjunction with conventional B cell ALL chemo. Fenben wrecks baby B cell production. Patient’s blood levels plummeted over 4wks of Fenben use. (Drs are scared its relapse…in our case, it’s def the Fenben)

Sadly, it’s mentioned here that Fenben use can result in leukopenia and erythropoiesis… guess I missed that. Study highly recommends monitoring CBC while on Fenben (at least at the start… study show roughly 6wks of constant use, CBC drops normalize).

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9413524/

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weaponizedgravy 5 points ago +5 / -0

“I only regret that I have but one updoot to give!”

Nathan Hale

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weaponizedgravy 4 points ago +4 / -0

KEK! # mylife I see you. You are not alone, fren. 🧡

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weaponizedgravy 5 points ago +5 / -0

THIS JUST IN:

Life, no protection against death.