🚨Sheriff: Senate candidate charged with making false statement about child sex trafficking..... (AKA JOHN HERE TO HELP) 🚨
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Hey, sorry for the late reply but yes I've been deaf since I was a baby. I had spinal meningitis, which most likely caused my deafness. I was born hearing until the spinal meningitis.
Your ear infection condition sounds so much like my wife's ear condition. She is deaf and has been since she was a baby and the cause is unknown (ear infection, genetics or something else?) but she have had a lot of ear infections, to the point where treatments like antibiotics she assume she have had, didn't work.
Her mother took her to a specialist, for which I believe was an ENT specialist and they installed tubes in her ears. From the installation to when she was 5 years old, it was successful until one of the tubes fell out of her ears. Since then as she's an adult now, she haven't had a lot of ear infection, but when she does, it's usually in the ear that don't have the tube in.
It looks similar to this:
https://images.onhealth.com/images/slideshow/ear_infection_s11_ear_tube.jpg
Totally understand where you are coming from on sign language and I don't blame you.
If you have always been able to hear for a long time until you started losing hearing, maybe cochlear implants (CI's) may be a good alternative for you? I am not a strong advocate of CI's but that's for when you've been deaf your whole life so getting CI's is not ideal for you.
Your situation may be different as if you have been able to hear, your brain still have the auditory memories so you should be able to pick up on the sounds faster than a deaf person who have never been able to hear properly their whole life, like me for example. I've met two hearing people who have CI's and they say they are able to hear well with CI's due to them being able to hear for the most part of their lives so that's why they're able to use CI's effectively than deaf people.
I had the same issue as you on wearing hearing aids and hearing white noise. Later on, I've developed tinnitus, which was so bothersome, I had to stop wearing it.
I don't know what to suggest on the communication part but like you mentioned, there isn't anyone in your vicinity that knows sign language so ASL isn't beneficial for you. Maybe install an app on your phone that will transcribe the conversations for you so you can reply back?
I have Live Transcribe on my Android phone that works pretty well enough for me to communicate with anyone, including my kid, who's hearing. My kid knows ASL but sometimes when my kid don't know how to spell the word as well as the sign for that word and we don't know what my kid is trying to say, we use the Live Transcribe app then we teach our kid the sign as well as how to spell the word. It's a great tool for us so it should help you out as well!
Ask me any questions you may have and you can PM me if it works better for you!
Thanks, that is helpful. I did get tubes put in my ears when I was 21 but they were so painful, I had them removed almost immediately. Tinnitus is the ringing noise right? I have had the ringing off and on most of my life. I have a 2nd cousin who is deaf that happened after he had a super high fever when he was two and he had already begun speaking so he knew some words. His wife is deaf as well but their two daughters are hearing. They live next door to his wife’s folks, so they get help in that area which is nice. I think he recently got cochlear implants put in. Schools always treated him differently and sent him off to a school for handicapped.
Ah I see, sorry the tubes didn't work well for you.
Yes, tinnitus is the ringing in the ear(s). I sometimes get it when my blood pressure spikes but I got it under control most of the time, especially now that I don't wear my hearing aid anymore.
My wife have several deaf relatives and the cause of their deafness is also unknown but they all suspect it's more of a genetic/hereditary thing than any symptoms they had when they were babies.
As for schools, yeah I've been noticing that in many areas, like the state I'm living in right now, who mistreat deaf people in the education system. That is very unfortunate as I went through one of the best education systems in America (that may be my opinion but how they treat the deaf students were top-notch as we received a lot of assistance and attention). My wife went through one of the worst deaf education systems ever but she came out of it fine with some minor issues but her classmates weren't fortunate enough as they've struggled to get by with the hearing people (i.e. communicating/socializing and working with hearing people).
I hope you have this figured out soon but like I said, don't hesitate to ask me any questions you may have!
Thanks. Personally I believe the entire public school system needs to crash and burn, but that’s an entirely different topic… One of my nieces on my dad’s side and a cousin’s daughter on my mom’s side both had same issue as me I found out, where our ear canals grew straight out rather than a downward slope like most people which didn’t allow for proper drainage of fluids like normal folks, causing hearing and speech struggles when they were growing up.. Thankfully tubes helped both of them.