Looking for some advice - I have been caring for a beautiful and wonderful gal who has Down syndrome for over 6 years. She was not doing well and we found out we had been exposed to Covid-19 so we went to the hospital in Neligh at the beginning of December. We both tested positive and were admitted. Being her the person who has been with her 24/7 for the past 6 years I know everything about her, how to help her eat, drink, you name it. She was being assisted with eating by hospital staff who were just trying to do their jobs but she aspirated, they determined she was unable to safely eat and put her on hospice - confused about how she could be put on hospice without some form of terminal illness? They stopped her IV fluids and stopped feeding her and allowing her to drink. They have since moved her to a nursing home. I was told she was in her "final hours" the week before Christmas. Here we are days after the New Year and she is still here with us. I had been trying to feed her and give her drinks because she was not aspirating with me because I know her and know how to feed her and how to help her. When it was discovered that I was helping her to eat and drink my visiting hours to the nursing home to see her were cut down to 1 hour a day. I am just trying to advocate for this person who came into my life 6 years ago. She's a sweet and amazing person and I hate to see her go through this. She is not ready to pass - I have tried contacting APS, disability rights, various attorneys and I'm getting nowhere! It is breaking my heart watching her go through this, starving and there is nothing I can do about it. There has to be someone out there who knows what else I can try, or who could help. Someone please, before it's too late.
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Where are her parents? Who has legal custody? How old is she?
sadly, family chose hospice and her caregiver does not agree.
not my story...I have permission to share someone elses story.
Kid will dehydrate to death before that
Sounds like the family spotted an opportunity to get rid of their "inconvenience".
It usually family then it is the state. Most often the state keeps people with handicaps as full codes. If she is on hospice that means the hospital doctors went to the ethics committee. The ethics committee decided to make her a DNR. They in turn petitioned the court to make her DNR. I am guessing she is a ward of the state. If she has family that made this decision then contact them. Lately I have seen a fair amount of mentally disabled adults being made DNR not all have had Covid. But it's a new trend Covid seems to be the cover. But it used to literally take an act of God to make a ward of the state a DNR. But not anymore
Modern eugenics in action
I am so sorry this is happening. Praying for her and you to get the answers you need to save her life. God Bless you and please send someone to her with the answers she needs.
Have you tried contacting Leigh Dundas? She is a human rights attorney who is fighting mandatory jabs. Here is a little bit about her on the Frontline Drs website. https://americasfrontlinedoctors5.com/legal_team/leigh/
Unfortunately, it in her family's hands. All you can do is present your side and hope the family does the right thing.
Have no advice, but will be praying for you both.
I have seen this kind of thing before. The care of disabled adults and abused children is horrendous. Social workers are too often the bad guys, being the usual wokes, and thinking they control everyone. If a mentally disabled person is abused in a group home, the truth is covered up. This is because all levels of government have massive corruption. Fight for the people to take control of local and state governments, and go after this issue pronto. There needs to be citizen committees watching the local government.
As to this situation, maybe quickly publicize it. It looks like Katrina already tried everything else.
Yes!! Any independent news willing to take this story? Perhaps we contact Project Veritas or Elijah Schaffer or someone of that magnitude? Andy Ngo?? Anyone?
The best approach might be local- and state-level. It is much easier to make lower level officials pee in their pants.
I used to be a feeding therapist in nursing homes. You need to get ahold of her doctor to get her tested. Her doctor would need to write s script for this evaluation to take place. She may be aspirating there bc the aides maybe drowning her when she can only handle one sip at a time or they may need to thicken her fluids. One way or another she needs a feeding evaluation by a qualified Speech-Language Pathologist or an Occupational therapist. (Both disciplines do these evals). They determine what she is safe to eat or drink and if her liquids need to be thickened and how much. And they also test the consistency of her food and what she can handle without choking. Every facility should have one of these therapists available. The major problem after an eval is that not all nursing home staff will take the time to adopt the new eating protocols. That is up to the head nurse who gives her care to not only make sure the aides feed her correctly but to make sure that dietary changes the food she is allowed to have. It is dietary that needs to provide the correct kind of liquids and foods for her to eat at every meal.
They want her dead. What can you do??
Can you be her guardian ad litum? I know I did not spell that right.