Welcome to General Chat - GAW Community Area
This General Chat area started off as a place for people to talk about things that are off topic, however it has quickly evolved into a community and has become an integral part of the GAW experience for many of us.
Based on its evolving needs and plenty of user feedback, we are trying to bring some order and institute some rules. Please make sure you read these rules and participate in the spirit of this community.
Rules for General Chat
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Be respectful to each other. This is of utmost importance, and comments may be removed if deemed not respectful.
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Avoid long drawn out arguments. This should be a place to relax, not to waste your time needlessly.
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Personal anecdotes, puzzles, cute pics/clips - everything welcome
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Please do not spam at the top level. If you have a lot to post each day, try and post them all together in one top level comment
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Try keep things light. If you are bringing in deep stuff, try not to go overboard.
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Things that are clearly on-topic for this board should be posted as a separate post and not here (except if you are new and still getting the feel of this place)
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If you find people violating these rules, deport them rather than start a argument here.
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Feel free to give feedback as these rules are expected to keep evoloving
In short, imagine this thread to be a local community hall where we all gather and chat daily. Please be respectful to others in the same way
I have a serious reaction to UV from the sun, due to Lyme. I dress like a Bedouin to garden, everything is covered, I still cannot tolerate it during peak 11 am - 3 pm on a cloudless day. I use UV protective clothing, wear gloves. It's a heartbreaker, because I have worked so hard and changed my life to care for difficult people in my home so that I could afford this 5 acres and continue to grow food and herbs and berries, etc, and age and my own disease limits the time I can do what I love. Enough complaining though, what I have some people dream about. Cover yourself, wear a UV protective hat, long sleeves, and dont lay out in the sun to get "tan". Desert people from hot places have always covered themselves, people in hot places take a break, called a siesta in Spanish. For Vitamin D it only takes 15 minutes of exposure to get what you need, I eat foods with it in it and take a supplement, because just 2 minutes of exposure can ruin my day.
I'm sure you have heard of this before, but have you looked up ivermectin as a Lyme disease treatment?
I have, but I developed something called Mast Cell Activation Syndrome, I cannot take or do anything that would cause a possible Herz reaction, I may not survive it. After doing a parasite protocol for the Lyme bacteria, I ended up in the ER needing a bolus of super antihistamine with a steroid, I was head to toe hives, serious, all over, and my pulse was over 150 with a b/p of 83/36, it was BAD. The mast cells can react to anything they see as a threat, things that did not bother me when I was younger, whatever the cleanse did to cause the herz die off triggered the immune defense. So I manage it with an a simple protocol , and a very restricted diet. In 6 months my doc says it should calm down enough to proceed slowly. It is one day at a time and pure but simple foods, Claritin, Pepcid a/c and an asthma med, Singular, and enough supplements to choke a horse. I think I take in more vitamins than I do food. My doc is a godsend and believes in many things, but with MCAS, I have to tread carefully and not try to get well all at once. Right now it is management. Thank you though, for considering this.
Oh, that sounds like a real obstacle course! Lyme disease sounds really life affecting.
I have my own affliction which is under control now but for a few years I had to wear dark polarised glasses much of the time to avoid triggering grand mal seizures. I still avoid certain conditions.
it's totally different but I know what it's like to have a constant life affecting condition.