Q 4966 - "Protect your DNA".....🧬 🧬 🧬 NEVER Send YOUR DNA To Any LAB Anywhere... 🧬 🧬 🧬
(media.greatawakening.win)
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They do routine newborn genetic screening for certain conditions when children are born in the US. However, they have been working on expanding that routine screening to look for other markers - but it is not prime time yet. Blood samples are not routinely stored and the logistics of trying to do something like that is a nightmare. Usually if a parent wants to store cord blood, they have to engage a third party to do so. Long term storage of any biological sample opens the door for degradation of the samples and must be done correctly. So unless a specific marker is targeted with that particular blood sample, the opportunity goes away. Complete gene mapping is not an easy process and is complicated. At the present time, only specific sequences or markers are targeted whether using blood or cheek swabs. There has to be something specific that is being looked for.
You can opt out through religious exemption which we did. The hospitals don't let you know though they just do it. According to my state's law, parental consent isn't required. Total joke.
Dealing with the entire system today is a minefield. I know it from the inside and saw what a mess it all was years ago and tried to educate my patients to be better advocates for themselves. Intake forms at hospitals is the place where all the wording allows them to pretty much do that kind of nonsense behind your back without telling you - because a person basically gives them consent when they are admitted. Consent to treatment is left pretty vague. Unless a patient is proactive, as it sounds like you actively were, most are ignorant as to what they are agreeing to when they sign those forms. The digital intake nonsense really bothers me. People don't even bother reading or asking for a copy of whatever the hell they are signing. It always amazes me. Good for you protecting your kids.
Thanks. Made me look further - but it is not surprising.
They may be keeping the spot samples, but to derive intact DNA from a stored spot sample in storage is not so easy - especially the older the sample is. There is a process and it can be tedious. The condition of the sample is critical. The problem come into play with long term storage - the weak link in the chain. Biological samples degrade if not kept in the proper conditions. Research labs at universities do a much better job at storage. But I will say, I don't have a lot of confidence in the third party storage hand off for stuff like this. Still, the fact that they are being stored is not a good thing and it needs to be addressed. People would be shocked to find out the number of stored tissue and blood samples that have been collected over the years that they are unaware of.
This speaks volumes about what people are agreeing to when they sign those hospital admission forms. The forms give the hospital consent to use almost anything that comes from a body for research purposes. It is a very generalized consent. People need to read those forms carefully. At least when they used to have paper consent forms people may have read them - even if they didn't fully understand them. Now with digital signature admission processes, basically the person behind the desk tells the patient nothing except sign. Nobody bothers to know what they are signing, nor do they ask for a hard copy. It always amazes me how easily people are willing to literally sign their life away.