my friend has this, trigeminal neuralgia. he's had it for approx 30 years. it is horrible to watch when it acts up. they did put him on anti-seizure meds for it, but it didn't help so he quit taking it.
he doesn't know how it started. he said one day he started having severe pain on one side of his face that wouldn't go away, so his dentist pulled his tooth, then pulled another, then another and the pain never went away. then they diagnosed him with TN. i worry about him when it flares up because when i looked it up and i read it is called the "suicide disease", i then realized how much pain he must be in.
his friend's wife has TN on both sides of her face. she went in and had surgery done on one side where they put something over the nerve endings to stop them from sparking. she won't have the other side of her face done. she said the pain from the surgery was worse than the pain from the TN.
All too often teeth get pulled when TN is not considered in the differential diagnosis of facial pain. Alcohol injection into the painful nerve branch is often very helpful.
I’ve had bouts of neuralgia for many years. Usually in the head or face a feeling of sore skin at first. It progresses to a localized spot with shooting pains that feel like lightning just hit you in that spot. I call it hatchet head. These shooting pains come every few minutes. I’ve had them so bad they were only seconds apart….I never heard “suicide disease” but I can understand it and been driven to thoughts of that myself. The pain actually lifts your head off the pillow….
From years ago I read an article in Prevention Magazine, Dr Rodale (if I recall) spoke of …..L- LYSINE…… for inflamed nerve endings….altho not neuralgia specifically……but hey, same thing , right……
I took as preventative and it actually works….less and less attacks that never lasted longer than a couple of days……
Anything can set it off…a cool breeze, a hot breeze, brushing teeth, combing hair…it seems it just happens. Now I only get an attack when I fail to take the L-lysine for several weeks, I quickly double up and thankfully it never progresses beyond the sore skin stage. When you read up on L-lysine now a days this doesn’t get mentioned for neuralgia.
Dr. Rodale was ahead of his time, he turned me on to
L-CYSTEINE 45 years ago for lung protection for smokers…. Today we call
L-CYSTEINE ….”NAC” . I’m 75, pure blood since infancy, still smoke….thru the grace of God haven’t had even a cold since I’m 7.
When it’s time to die, I’d rather do it at Gods choosing then by man !
Frens , stay well, stay safe…pray for our dear President.
it does seem my friend has more "episodes" in the hot summer months. he still gets one here and there in the winter, but something about the heat bothers those nerves for him, anyway. i can let him read your post. i truly appreciate your time to write to me. what he has is truly horrible to watch when it flares.
the only way i know when he's having a flare up is when he clenches his eyes closed, puts his hand to his face and i can see tears running down his cheeks. he's stone cold silent and stiffens up. it will happen a few times within minutes. it's truly sad because i feel helpless watching it happen. again, i truly appreciate you taking the time to get with me.
Ty for this, passed along to someone I know with TN for years now, had migraines their whole life. The anti-seizure meds aren’t working reliably anymore.
i have never heard of Hypericum before so i looked it up, it say it's St. John's wort which i have heard of that, but never looked into that.
as i read the article it says it may interact with other meds and unfortunately my friend had a heart attack Oct. 2023, (no vaxx). so i can see if he wants to talk to his Dr about this. thanks so much brain! it would be so nice to never see him have another episode of TN.
I understand. It is difficult especially all they ever do is scared you with everything. Homeopathic is dilution so it should be fine. Ask about homeopathic instead of just herbal St. John's Wort.
yes they do scare you with all the info on interactions with other drugs. isn't it something how they never have a word to say about how the vaxx could/would interact with other drugs you take? they are pigs. thank you again!
thank you Bean for this information. i will pass on to my friend.
These pre-clinical studies have prompted the evaluation of minocycline in clinical trials in patients with neuronal disease, where it has shown promising neuroprotective properties
it's really hard to put into words how much i loathe Big Pharma and the medical industry. I noticed in this article about the properties of this med helping people with Parkinson's and RA as well.
i lost my father to Parkinson's 5 years ago, it was horrible to watch him waste away like that and this med might have helped him.
i have RA and have had it since 2000 and not once has this med been introduced to me. i've been on all the hard stuff for two decades. right now they put me on Skyrizi. it's like $14,000 a pop.
and how the dr's have left all these people with TN down, it's disgusting to say the least of these pigs.
oh Bean, i'm so very sorry about your mom and you being the one to find her. i cannot even imagine.
i do have a PCP and he is a dick. he has pushed the jab on me multiple times and the final straw was when he said, he didn't know who was telling me stories about the vaccines but that he was the professional and i should listen to him. i said, it was my RA doctor that told me when i was first diagnosed with RA to NOT take any vaccines. that shut him up. so he's out right off the bat. and i also am vaccine free! Thank you Jesus!
the very first RA dr i had, he started me out on an antibiotic, i think it was called Azithromycin? but it did not work for me. he has left the state. not sure if my current RA dr will go this route? i can try and ask.
well i'm def not a dr and the article was hard for me to navigate through, but what i did decipher from it was helpful and i very much appreciate it because i do worry about my friend especially when he has his episodes with the TN. all i can do is pass it on to him and see what he thinks.
appreciate you very much and hope you continue to try and help people. even helping 1 in 100 is worth it!
and please keep me updated on how you are doing! have a very blessed day!
Are these conditions (when not connected to injections) do you think, linked to geographic location? Like environmental contributing factors may be involved?
i've only ever met two people in my area with TN. both way before covid or jabs were here. i def do not know how many people in my area do have it though.
my friend has this, trigeminal neuralgia. he's had it for approx 30 years. it is horrible to watch when it acts up. they did put him on anti-seizure meds for it, but it didn't help so he quit taking it.
he doesn't know how it started. he said one day he started having severe pain on one side of his face that wouldn't go away, so his dentist pulled his tooth, then pulled another, then another and the pain never went away. then they diagnosed him with TN. i worry about him when it flares up because when i looked it up and i read it is called the "suicide disease", i then realized how much pain he must be in.
his friend's wife has TN on both sides of her face. she went in and had surgery done on one side where they put something over the nerve endings to stop them from sparking. she won't have the other side of her face done. she said the pain from the surgery was worse than the pain from the TN.
All too often teeth get pulled when TN is not considered in the differential diagnosis of facial pain. Alcohol injection into the painful nerve branch is often very helpful.
i have never heard of this. i can show your response to my friend. thank you!
I’ve had bouts of neuralgia for many years. Usually in the head or face a feeling of sore skin at first. It progresses to a localized spot with shooting pains that feel like lightning just hit you in that spot. I call it hatchet head. These shooting pains come every few minutes. I’ve had them so bad they were only seconds apart….I never heard “suicide disease” but I can understand it and been driven to thoughts of that myself. The pain actually lifts your head off the pillow….
From years ago I read an article in Prevention Magazine, Dr Rodale (if I recall) spoke of …..L- LYSINE…… for inflamed nerve endings….altho not neuralgia specifically……but hey, same thing , right…… I took as preventative and it actually works….less and less attacks that never lasted longer than a couple of days……
Anything can set it off…a cool breeze, a hot breeze, brushing teeth, combing hair…it seems it just happens. Now I only get an attack when I fail to take the L-lysine for several weeks, I quickly double up and thankfully it never progresses beyond the sore skin stage. When you read up on L-lysine now a days this doesn’t get mentioned for neuralgia.
Dr. Rodale was ahead of his time, he turned me on to L-CYSTEINE 45 years ago for lung protection for smokers…. Today we call L-CYSTEINE ….”NAC” . I’m 75, pure blood since infancy, still smoke….thru the grace of God haven’t had even a cold since I’m 7.
When it’s time to die, I’d rather do it at Gods choosing then by man ! Frens , stay well, stay safe…pray for our dear President.
it does seem my friend has more "episodes" in the hot summer months. he still gets one here and there in the winter, but something about the heat bothers those nerves for him, anyway. i can let him read your post. i truly appreciate your time to write to me. what he has is truly horrible to watch when it flares.
the only way i know when he's having a flare up is when he clenches his eyes closed, puts his hand to his face and i can see tears running down his cheeks. he's stone cold silent and stiffens up. it will happen a few times within minutes. it's truly sad because i feel helpless watching it happen. again, i truly appreciate you taking the time to get with me.
Ty for this, passed along to someone I know with TN for years now, had migraines their whole life. The anti-seizure meds aren’t working reliably anymore.
Can I ask dosage and frequency? I see pills but also powder and wondering what brand or method you use and trust?
Wow. I am so sorry for them.
Have you heard about Hypericum for nerve pain? Look into it. I would take 1M
i have never heard of Hypericum before so i looked it up, it say it's St. John's wort which i have heard of that, but never looked into that.
as i read the article it says it may interact with other meds and unfortunately my friend had a heart attack Oct. 2023, (no vaxx). so i can see if he wants to talk to his Dr about this. thanks so much brain! it would be so nice to never see him have another episode of TN.
I understand. It is difficult especially all they ever do is scared you with everything. Homeopathic is dilution so it should be fine. Ask about homeopathic instead of just herbal St. John's Wort.
yes they do scare you with all the info on interactions with other drugs. isn't it something how they never have a word to say about how the vaxx could/would interact with other drugs you take? they are pigs. thank you again!
thank you Bean for this information. i will pass on to my friend.
it's really hard to put into words how much i loathe Big Pharma and the medical industry. I noticed in this article about the properties of this med helping people with Parkinson's and RA as well.
i lost my father to Parkinson's 5 years ago, it was horrible to watch him waste away like that and this med might have helped him.
i have RA and have had it since 2000 and not once has this med been introduced to me. i've been on all the hard stuff for two decades. right now they put me on Skyrizi. it's like $14,000 a pop.
and how the dr's have left all these people with TN down, it's disgusting to say the least of these pigs.
oh Bean, i'm so very sorry about your mom and you being the one to find her. i cannot even imagine.
i do have a PCP and he is a dick. he has pushed the jab on me multiple times and the final straw was when he said, he didn't know who was telling me stories about the vaccines but that he was the professional and i should listen to him. i said, it was my RA doctor that told me when i was first diagnosed with RA to NOT take any vaccines. that shut him up. so he's out right off the bat. and i also am vaccine free! Thank you Jesus!
the very first RA dr i had, he started me out on an antibiotic, i think it was called Azithromycin? but it did not work for me. he has left the state. not sure if my current RA dr will go this route? i can try and ask.
well i'm def not a dr and the article was hard for me to navigate through, but what i did decipher from it was helpful and i very much appreciate it because i do worry about my friend especially when he has his episodes with the TN. all i can do is pass it on to him and see what he thinks.
appreciate you very much and hope you continue to try and help people. even helping 1 in 100 is worth it!
and please keep me updated on how you are doing! have a very blessed day!
Are these conditions (when not connected to injections) do you think, linked to geographic location? Like environmental contributing factors may be involved?
i've only ever met two people in my area with TN. both way before covid or jabs were here. i def do not know how many people in my area do have it though.
Thanks, I'm always looking for patterns, it's my thing.
I have read it may be related to shingles or herpes simplex viruses.
Well crap, a pox that goes neural...