I’ve had bouts of neuralgia for many years. Usually in the head or face a feeling of sore skin at first. It progresses to a localized spot with shooting pains that feel like lightning just hit you in that spot. I call it hatchet head. These shooting pains come every few minutes. I’ve had them so bad they were only seconds apart….I never heard “suicide disease” but I can understand it and been driven to thoughts of that myself. The pain actually lifts your head off the pillow….
From years ago I read an article in Prevention Magazine, Dr Rodale (if I recall) spoke of …..L- LYSINE…… for inflamed nerve endings….altho not neuralgia specifically……but hey, same thing , right……
I took as preventative and it actually works….less and less attacks that never lasted longer than a couple of days……
Anything can set it off…a cool breeze, a hot breeze, brushing teeth, combing hair…it seems it just happens. Now I only get an attack when I fail to take the L-lysine for several weeks, I quickly double up and thankfully it never progresses beyond the sore skin stage. When you read up on L-lysine now a days this doesn’t get mentioned for neuralgia.
Dr. Rodale was ahead of his time, he turned me on to
L-CYSTEINE 45 years ago for lung protection for smokers…. Today we call
L-CYSTEINE ….”NAC” . I’m 75, pure blood since infancy, still smoke….thru the grace of God haven’t had even a cold since I’m 7.
When it’s time to die, I’d rather do it at Gods choosing then by man !
Frens , stay well, stay safe…pray for our dear President.
it does seem my friend has more "episodes" in the hot summer months. he still gets one here and there in the winter, but something about the heat bothers those nerves for him, anyway. i can let him read your post. i truly appreciate your time to write to me. what he has is truly horrible to watch when it flares.
the only way i know when he's having a flare up is when he clenches his eyes closed, puts his hand to his face and i can see tears running down his cheeks. he's stone cold silent and stiffens up. it will happen a few times within minutes. it's truly sad because i feel helpless watching it happen. again, i truly appreciate you taking the time to get with me.
Ty for this, passed along to someone I know with TN for years now, had migraines their whole life. The anti-seizure meds aren’t working reliably anymore.
I’ve had bouts of neuralgia for many years. Usually in the head or face a feeling of sore skin at first. It progresses to a localized spot with shooting pains that feel like lightning just hit you in that spot. I call it hatchet head. These shooting pains come every few minutes. I’ve had them so bad they were only seconds apart….I never heard “suicide disease” but I can understand it and been driven to thoughts of that myself. The pain actually lifts your head off the pillow….
From years ago I read an article in Prevention Magazine, Dr Rodale (if I recall) spoke of …..L- LYSINE…… for inflamed nerve endings….altho not neuralgia specifically……but hey, same thing , right…… I took as preventative and it actually works….less and less attacks that never lasted longer than a couple of days……
Anything can set it off…a cool breeze, a hot breeze, brushing teeth, combing hair…it seems it just happens. Now I only get an attack when I fail to take the L-lysine for several weeks, I quickly double up and thankfully it never progresses beyond the sore skin stage. When you read up on L-lysine now a days this doesn’t get mentioned for neuralgia.
Dr. Rodale was ahead of his time, he turned me on to L-CYSTEINE 45 years ago for lung protection for smokers…. Today we call L-CYSTEINE ….”NAC” . I’m 75, pure blood since infancy, still smoke….thru the grace of God haven’t had even a cold since I’m 7.
When it’s time to die, I’d rather do it at Gods choosing then by man ! Frens , stay well, stay safe…pray for our dear President.
it does seem my friend has more "episodes" in the hot summer months. he still gets one here and there in the winter, but something about the heat bothers those nerves for him, anyway. i can let him read your post. i truly appreciate your time to write to me. what he has is truly horrible to watch when it flares.
the only way i know when he's having a flare up is when he clenches his eyes closed, puts his hand to his face and i can see tears running down his cheeks. he's stone cold silent and stiffens up. it will happen a few times within minutes. it's truly sad because i feel helpless watching it happen. again, i truly appreciate you taking the time to get with me.
Ty for this, passed along to someone I know with TN for years now, had migraines their whole life. The anti-seizure meds aren’t working reliably anymore.
Can I ask dosage and frequency? I see pills but also powder and wondering what brand or method you use and trust?