It’s like Trump said, this new administration is poised to make great things happen. They are. They’re dismantling centralized banking, waking people up. The only thing they’ve really done which is not easily corrected would be our southern border. The fentanyl alone is dangerous not to mention all the women and children exploited by the cartel shit sticks.
My son was born 4 months early. Spent the first five months of his life in NICU. In his second week of life he had less than a 17 percent chance of survival. It was like 8 percent chance of survival without serious disability. He survived and is a fully functional child. I learned to embrace the suck, laugh a shit ton along the way, count your blessings and DIG DEEP to find the positivity in the WORST situations.
Don’t tell me this sucks worse than being informed that your first child isn’t going to make it. It was the best suck I’ve ever experienced. If we can all find the positive in our situation, we will be victorious.
“...bad times create strong men.”
These are the bad times. We are the strong!!!!
I get this in my soul. My kid diagnosed with a type of catastrophic epilepsy. Mortality is 20%. Today, this kid is 9. Special Needs, yes, a daily miracle yes. John 9:3 is inked on me forever.
It’s was all the special needs children and their parents in the Ronald McDonald House who inadvertently taught me this lesson.
We were the second longest stay in the house at the time we left. The woman who had been there the longest at that time was the mother of a 16 year old with Down’s syndrome. He was always non verbal but used sign language. He also had major heart issues. Out of the blue he got an infection behind his ear from his glasses rubbing. It turned to staph and infected his heart. Due to circulatory issues, he lost both hands and both feet.
That was game over for any self pity I might feel. Any time I would feel hopeless about our situation I would think of our neighbor at RMH. We spent a night chatting with her parents (the child’s grandparents). It was heart wrenching yet incredibly joyful. We shared pictures of our newborn son, they shared old pictures of them out on adventures with their grandson. The kid was non verbal, communicated through sign language and had both hands amputated. One night we arrived back to our unit at RMH and we could hear her crying hysterically. Through the wall. It was the saddest moment of my life. Worse than when we were told our son wouldn’t make it.
They spent the next year in rehabilitation. They finally got him home and it was a real struggle for them. When we arrived home with our son it was the happiest, most relief my wife and I had ever felt. A year and some months later they arrived home and it marked one of the most difficult points in their journey.
Life is what you make it. We can do this. We can make the best of these incredible challenges before us.
It's stories like these that make me wonder what kind of sick, twisted God would allow such shit to happen. Then I have to step back and realize it's part of His bigger plan, that everything happens for a reason. I pray for everyone, and relief for everyone. Thank you for your story, it puts so much perspective into my own life. <3
"For my thoughts are not your thoughts, neither are your ways my ways," part from Isaiah 55.
you can't see the good without something to compare it to, yeah is sucktastic when your living that pain, it however makes you stronger or breaks you, and lets you rebuild anew.
The same God that gives freedom to believe His promise and see victory, or reject it and get stuck with what ever Satan attacked you with. All you gotta do is ask.
It’s a good perspective to hold that all of us deserve even worse than any of what actually happens to us. The punishment for sin is eternal damnation and torment. God is perfect, and we don’t even compare to that. We are disgustingly depraved, and anything we do amounts to the worth of bloody period rags. It’s only by the grace of God and Jesus that we are even called by the Father to come to him regardless of our continual desire for sin and selfishness.
Too many people assume the we DESERVE the grace of God. That literally makes it not grace, as getting what is deserved is justice. We deserve death and torment, not grace.
I guess I will stop complaining about my new puppy barking at 3am. That’s my biggest problem in my life right now that directly affects me.
Exactly. 💜
We appreciated our stays at RMHC. No worries, food, warm bed, no cost. 🙌
I have to say I hate how we’ve accepted the leftist politically correct term “special needs.” They’re retards, period.
"Retard" has an actual derogatory connotation. And until we appropriate that term to no longer be that way, "retard" will continue to be perceived as an insult.
A "retard", is someone who is clearly capable or thinking critically, yet is not doing so in a particular situation and is a aspousing asinine ideas.
Just like in this situation. You are being a bit of a retard.
Have you ever heard of ARC?
It's the association of retarded citizens. They call themselves retarded, because they literally are. Calling them special needs or anything else won't change reality. And yes, that word can be used in a negative, offensive way, but it doesn't have to be.
Look, every liberal gets that name. Someone who is less capable doesn't need it.
Catastrophic epilepsy? As a very mild epileptic, I'm interested.
There are a number of catastrophic epilepsies that are rare. Do your own research. Google “intractable epilepsy” they have specific diagnostic criteria. The worst 2-3 carry mortality rates near 20% due to SUFEP.
A know someone who's child developed epilepsy after vaccine shots at 6 months. Borderline special needs child now. You mentioning epilepsy hits hard. You are not alone. Stay strong.
Very similar story. Born typical seizures began at 3mo. Old. Thank you for the support. It’s been a journey that I thank God for today. Changed cannabis laws in my state even. 🙌
I believe this friend of mine gives his kid prebiotics/probiotics and cod liver oil often to help the developing kids' brain. It's probably helping some, something you could research if you haven't already.
Went down those holes for a while. We also tried Holy Basil, Frankincense, none of those worked. Currently trying Lions mane. CBD helped a lot. Ketogenic diet for epilepsy helped but the battle wasn’t worth the modest control. It’s been a decade long journey now.